Skip to Main content Skip to Navigation
Journal articles

Une charte des listes de discussion entre patients : proposition pour une autorégulation

Abstract : Internet mailing lists (and other electronic forums) for discussions between patients are places where patient and their family and friends can talk, by e-mail, about their problems, exchange their experiences, and find support. The charter presented here proposes guidelines more specifically appropriate to this particular community -- patients having conversations -- than are either the general rules of Netiquette or the general guidelines for these lists. Three themes play a primary role in the guidelines set by this charter: the role of the list owners and moderators, the definition of the contents of exchanges, and relationships with doctors and more generally healthcare professionals. This charter is a regulatory instrument for lists that can serve a three-fold purpose: as a governance tool for list owners, as a tool for reflection for the constitution and definition of lists, and as training tools for list moderators.
Document type :
Journal articles
Complete list of metadata

Cited literature [29 references]  Display  Hide  Download

https://hal-mines-paristech.archives-ouvertes.fr/hal-00923102
Contributor : Cécile Méadel <>
Submitted on : Monday, January 6, 2014 - 11:57:15 PM
Last modification on : Wednesday, October 14, 2020 - 4:09:12 AM
Long-term archiving on: : Thursday, April 10, 2014 - 3:46:20 PM

File

2008CharteCMOziel.pdf
Files produced by the author(s)

Identifiers

  • HAL Id : hal-00923102, version 1

Citation

Cécile Méadel, David Oziel. Une charte des listes de discussion entre patients : proposition pour une autorégulation. La Presse medicale, Paris, Masson et Cie, 2008, 37 (12), pp.1809-1816. ⟨hal-00923102⟩

Share

Metrics

Record views

361

Files downloads

629