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Une charte des listes de discussion entre patients : proposition pour une autorégulation

Abstract : Internet mailing lists (and other electronic forums) for discussions between patients are places where patient and their family and friends can talk, by e-mail, about their problems, exchange their experiences, and find support. The charter presented here proposes guidelines more specifically appropriate to this particular community -- patients having conversations -- than are either the general rules of Netiquette or the general guidelines for these lists. Three themes play a primary role in the guidelines set by this charter: the role of the list owners and moderators, the definition of the contents of exchanges, and relationships with doctors and more generally healthcare professionals. This charter is a regulatory instrument for lists that can serve a three-fold purpose: as a governance tool for list owners, as a tool for reflection for the constitution and definition of lists, and as training tools for list moderators.
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Submitted on : Monday, January 6, 2014 - 11:57:15 PM
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  • HAL Id : hal-00923102, version 1


Cécile Méadel, David Oziel. Une charte des listes de discussion entre patients : proposition pour une autorégulation. La Presse medicale, Paris, Masson et Cie, 2008, 37 (12), pp.1809-1816. ⟨hal-00923102⟩



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