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Vaincre la mucoviscidose et maitriser la T2A : un cas d’activisme gestionnaire

Abstract : Patient Organizations and Prospective Payment System in France: A case of managerial activismMany scholars have described the capacity of patient organizations to produce and acquire a form of lay expertise to confront (and in some cases, partner with) medical knowledge. While this learning process has been crucial for the empowerment of these patient organizations, another kind of activism seems to emerge. This managerial activism implies the acquisition of bureaucratic and economic skills necessary to argue in front of public authorities and to protest against the economic valuation of the disease’s treatment. Recently, the association Vaincre la Mucoviscidose has decided to enroll experts to put into question the pricing of the cure for cystic fibrosis. This paper analyses how this critique has been rendered possible and in which way it implies a new kind of participation of patient organizations to health policies.
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Submitted on : Wednesday, February 4, 2015 - 12:11:39 PM
Last modification on : Wednesday, November 17, 2021 - 12:33:10 PM


  • HAL Id : hal-01113062, version 1


Pierre-André Juven,. Vaincre la mucoviscidose et maitriser la T2A : un cas d’activisme gestionnaire. Participations - Revue de sciences sociales sur la démocratie et la citoyenneté, De Boeck Supérieur, 2014, pp.239-262. ⟨hal-01113062⟩



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